Sooo.. we have now had a few people ask us what exactly a port is and what it’s there for so we thought you we try and inform people a little! Continue reading “Port.”
so we missed the four month update after a busy Christmas we just didn’t get the time so I will try and fit everything into this one.. over all Stanley is doing really well! Continue reading “5-6 month update! “
Originally this post was going to go up a few weeks ago but as Stanley has been poorly we’ve only got round to writing it up now! Continue reading “It’s in your genes. “
Another year has come and just about to go, we’re only just getting used to saying its 2016 and now thinking are we really about to enter 2017? In this blog I want to reflect on what has happened and what is yet to come. Continue reading “Through Daddy’s Eyes: we’ll tak a cup o’kindness yet, for auld lang syne.”
one of the main reasons for starting this blog was to raise awareness of cystic fibrosis.. when Stanley was born me and jack knew of the condition but not to the extent that we obviously know about it now Continue reading “feel free.. “
Over the last few weeks we have had a few people mention to us about the news they have been seeing on the tv, the drug orkambi.
It’s been a while since I last shared a blog with you so here’s ‘Through Daddy’s Eyes, Three Months On’. Firstly, I want to introduce you all properly to our eldest lad Alfie. I also want to give you and insight to how I’m involved in Stanley’s daily routine and the thoughts I go through on a daily basis as a Dad having two children, one of which having Cystic Fibrosis. So here goes again… Continue reading “Through Daddy’s Eyes, 3 months on”
so after being in hospital again all week we are now officially back home!
This week seemed to go a lot slower than when we had previously been admitted, I think it might have been that this week we just didn’t know what was going on Continue reading “we’re home! “
we’re back again!.. in hospital that is.
At the start of last week Stanley’s cough seemed to make an appearance again, we had only been back down to one lot of physio a day and down to prophylactic antibiotics for just a few days, but within a few days he seemed to be sounding rather noisy! It’s like we tempt fate every time we get down to just one lot of physio the dreaded cough returns!