“All that matters is the baby is healthy”

I actually find this a weird saying since having the boys.. it’s not something I find myself saying to anyone now – Because my children weren’t born healthy.

In fact when people ask us about having more children it becomes quite awkward at times, reactions are one end of the scale to the other either lovely or people actually look at you like your almost mad, usually right after the same questions each time and the same answers.. Continue reading “all that matters is the baby is healthy..” →

we have used over 10,000 syringes in 18 Months to provide water, medicines and enzymes 💉

over 1100 nebulised treatments totalling around just over 13 days of stanleys life. 💊

in just 18 months we have had around 10 admissions to hospitals. 🏥

15 cf clinic appointments. 👶🏼 Continue reading “ORKAMBI NOW.” →

It’s Stanley’s first birthday coming up and I thought it would be a nice time to look back on the year we’ve had and coupled with the fact I think my last blog was a bit brief – I think you’d agree we’ve had a hectic year, hospital admissions, bike rides and proposals and that not even half of it! Normally Sophie proof reads my blogs but this time I’d like her to read this in the same vein you, the people who follow the blog, do.

Continue reading “Through Daddy’s Eyes: The First Year” →

This time last week we would of ridden 90 miles and have been on our way to Calais.. on the morning of the bike ride I had a churning feeling in my stomach as myself and two elder brothers were hours away from embarking on a 300-mile challenge across two countries on just two wheels. Continue reading “Through Daddy’s Eyes: Our First Chapter” →

so we are very aware that we have been VERY quite on the blog front lately!

It genuinely hasn’t been our intention to leave or forget about this blog , it’s something we want to keep going, to build up people’s awareness of cystic fibrosis and all that it involves. Continue reading “we’re still here! “ →

It’s been a week now since we held our charity night in order to raise the funds to allow Jack and his brothers to take part in the bike ride from London to Paris to raise funds for the CF trust! Continue reading “A few thank you’s! “ →

Sooo.. we have now had a few people ask us what exactly a port is and what it’s there for so we thought you we try and inform people a little!  Continue reading “Port.” →