Get it off your chest CF …
As most of you that follow the blog know we have two boys – Alfie and Stanley.
Alfie now 7, came along when me and Jack were just seventeen, at the time it was easy for most people to judge to look at us both as just another teenage couple that wouldn’t last, “just another set of teenage parents”
“All that matters is the baby is healthy”
I actually find this a weird saying since having the boys.. it’s not something I find myself saying to anyone now – Because my children weren’t born healthy.
In fact when people ask us about having more children it becomes quite awkward at times, reactions are one end of the scale to the other either lovely or people actually look at you like your almost mad, usually right after the same questions each time and the same answers.. Continue reading “all that matters is the baby is healthy..”
we have used over 10,000 syringes in 18 Months to provide water, medicines and enzymes 💉
over 1100 nebulised treatments totalling around just over 13 days of stanleys life. 💊
in just 18 months we have had around 10 admissions to hospitals. 🏥
15 cf clinic appointments. 👶🏼 Continue reading “ORKAMBI NOW.”
Most of the blogs that I do are planned in a way – I jot down emotions and thoughts as I go along and then bring them all together and share these with you. This particular blog is pretty much unplanned and that’s because Sophie showed me a blog recently which got me thinking. The blog Sophie showed me made me think that Stan will see this one day, he will see the blogs we have written from our emotions laid out to trying to raise awareness of Cystic Fibrosis. I also thought the reason this blog is here, the reason we have started fund raising is because of Stanley and to show you, our followers, a life with Cystic Fibrosis. We have never spoken to Stan directly through one of our blogs, to tell him how we feel or why we have done certain things. I think the time is right for me to do that, to speak to Stan at a time we are just about to embark on a new year and a time where we reflect. Continue reading “Through Daddy’s Eyes: When you’re ready Son”
well now we’re back to some sort of normality after the school holidays and hospital admissions it’s time to focus more on fundraising and the blog again.
We have been abit quiet on the blog front for a while now, I don’t think it was intentional but sometimes there’s just not a spare minute in the day!
It’s Stanley’s first birthday coming up and I thought it would be a nice time to look back on the year we’ve had and coupled with the fact I think my last blog was a bit brief – I think you’d agree we’ve had a hectic year, hospital admissions, bike rides and proposals and that not even half of it! Normally Sophie proof reads my blogs but this time I’d like her to read this in the same vein you, the people who follow the blog, do.
This time last week we would of ridden 90 miles and have been on our way to Calais.. on the morning of the bike ride I had a churning feeling in my stomach as myself and two elder brothers were hours away from embarking on a 300-mile challenge across two countries on just two wheels. Continue reading “Through Daddy’s Eyes: Our First Chapter”
so we are very aware that we have been VERY quite on the blog front lately!
It genuinely hasn’t been our intention to leave or forget about this blog , it’s something we want to keep going, to build up people’s awareness of cystic fibrosis and all that it involves. Continue reading “we’re still here! “
It’s been a week now since we held our charity night in order to raise the funds to allow Jack and his brothers to take part in the bike ride from London to Paris to raise funds for the CF trust! Continue reading “A few thank you’s! “
